Voices of the CIDP Community

OCTOBER 2024 | 1 MIN VIDEO

REAL PEOPLE, REAL STORIES

Voices of the CIDP Community

Shining Through CIDP hears you: CIDP is tough, but living with it doesn’t have to be

You know it better than anyone, there’s nothing easy about living with CIDP (chronic inflammatory demyelinating polyneuropathy). So, when raising awareness of this rare disease, who better to turn to than real people like you—those who call CIDP like it is and choose to rise above it each and every day. These are our Shining Through CIDP Shine Makers, real voices that have the power to inspire the entire CIDP community to live their fullest life with CIDP, no matter where they are in their journey.

Meet some of the Shining Through CIDP Shine Makers

“You will not stay where you are, so do not be so hard on yourself. Be gentle with yourself and treat yourself like you would a loved one. Make sure you are doing research from reputable sources.”

- Crystal, diagnosed with CIDP in 2014

“Hang in there; you are not alone. We are here with you.”

- Martha, diagnosed with CIDP in 2018

“Embrace. You cannot run or hide from your diagnosis—but embrace it. You must accept your diagnosis before you can let people help you. It is difficult to do, but very important.”

- Scott, diagnosed with CIDP in 2015

“Mind your limitations and do not get angry with yourself. Be gentle with yourself, like a child who is learning.”

- Caitlyn, diagnosed with CIDP in 2020

Voice your story

Shining Through CIDP was created to help those living with CIDP by providing reliable information, helpful tips, and relatable stories of both trial and triumph—featuring people with CIDP like you.
 

YOU MAY ALSO LIKE

Scott Discovered a New Passion After His CIDP Diagnosis
REAL PEOPLE, REAL STORIES

Scott Discovered a New Passion After His CIDP Diagnosis

After CIDP (chronic inflammatory demyelinating polyneuropathy) stopped Scott’s career as a dancer and choreographer, he needed to find new ways to express his passion for storytelling.

7 MIN READ
Adapting Your Social Life: Tips From People With CIDP
EMOTIONAL WELLNESS

Adapting Your Social Life: Tips From People With CIDP

Find ways to help adjust and maintain your social life with CIDP.

8 MIN READ
Discussing CIDP With Healthcare Professionals
DISEASE & TREATMENT

Discussing CIDP With Healthcare Professionals

Get practical tips.

5 MIN READ

DON’T MISS OUT!

Sign up for Shining Through CIDP to stay in the know and help us continue providing information that’s relevant and useful for living better with CIDP.

SIGN UP NOW